Sorry for the delay, but Charlee is HOME!!! We got home last night. We are still trying to get adjusted to life with this little sweeties feeds and routine, but we are all okay! We met a lot of great families during our stay at Primary's. This particular 11 year old boy named Seth and his family stole our hearts! He was in surgery just a day before Charlee getting a brain tumor removed. As w...e got to know this family through just a few short days we have grown to love them so much! I received a message from his mom today telling me they have gotten their miracle...the tumor is benign!!!! As tears filled my eyes and joy filled my heart for this wonderful family, I told Charlee the great news and she smiled her wonderful smile. I know they connected on a level none of us can understand! Miracles still happen! The power of prayer is real! I am so grateful for a Father in Heaven that loves us and carries us through our hard times. Thank you all for carrying me through the last 11 days through your kind words and prayers! And also to Seth and his family for showing me such great faith! Much love to you all!!
Monday, November 11, 2013
Saturday, November 9, 2013
Day 9...yes we are still here! She is doing ok, but we are just trying to get her to tolerate her bolus feeds (faster non continuous). She had 2 crazy weird scary episodes yesterday from them. So we are slowing things down today and will try again tomorrow. If everything goes good we will possibly get to go home on Monday at the earliest. Thank Goodness we are so close to this amazing hospital with this incredible medical staff. A huge THANKS to them and all of you for your help, support and prayers.
Thursday, November 7, 2013
Charlee is doing ok today, we are even getting a few smiles. It has been a very emotional week for me. Even with knowing her ability to swallow would eventually go, it hasn't made it any easier. Watching my baby go from a normal, active, s...mart, spunky little lady, to losing her ability to walk, talk, see and eat is harder than anything! So today enjoy what you have, for you never know when it will be taken from you! She really is a valiant spirit that is extremely special, anyone who meets her is truly touched by an Angel. I love you Charlee Bear!
Wednesday, November 6, 2013
Day 5 update. She has been in quite a bit of pain today, agitated and somewhat fussy. All in all she is proving once again how strong she is! So far she is tolerating her feeds great. I just pushed through her first dose of meds, easy peasy...! She's just awaiting a visit from her 2 favorite people, Jericho and Cashlee. I miss them too! We are now looking at being discharged on Friday at the earliest. Visitors welcome!
Love to you all!
Love to you all!
Tuesday, November 5, 2013
Charlee went into surgery a lot later than planned, but she is now back in the room resting. It went good, she's just really sleepy still! She is such an amazingly strong little lady! We have a new plan in place to try a new seizure med that I'm very hopeful about. If all goes well with feeds, we will hopefully be discharged Thursday. Thank you all for your concern.
The results for Charlee's swallow study show her ability to swallow is gone, it is no loner safe for her to eat or drink by mouth. It showed she aspirates when she swallows. This breaks my heart! Food was one of the few joys left in her life, she loves to eat! They also have her hooked up for a constant EEG to monitor and figure out how to best control her increased seizures. They will be trying a few different seizure meds to see what works for her. Her G tube surgery is tomorrow at 3:30 pm. She is in a lot pain, crying a lot and very uncomfortable. Please pray she will be comforted in her time of need and that her surgery will be complication free. Thank you all! Much love, Catrina —